Caron Leid is an author, Alzheimers advocate , keynote speaker and caregiver, Caron is a doctoral candidate and has published several articles on the topic of living with Alzheimer's disease. She is a dedicated mother and passionate student.
Her book Alzheimer's: What They Forget To Tell You has been featured on Chapters, Amazon, Barnes & Noble and international bookstores. Her career and passion surrounds educating others and she believes in the pay it forward principle. As the primary caregiver for her mother for the last 17 years, Caron hopes that her story can inspire people that struggle with Alzheimer’s disease and the various aspects surrounding the disease.
When my mother was first diagnosed 17 years ago, at the age of 57, I had a newborn and was propelled immediately into the sandwich generation. There was not many resources or information surrounding living with the disease in the year 2000. I started journaling my experience more for cathartic purposes, and then had the courage enough to publish it in hopes of helping others.
Since then, I have written several journal articles on the topic of Alzheimer's disease and living with the disease. I have appeared on CTV National News, I have worked with the Alzheimer's Society of Canada, and have spoken at an International Alzheimer Disease and Dementia
Conference in 2015. 17 years of the day to day emotional, mental and physical management of the disease has provided me a unique perspective and the ability to help educate others. I am presently working on my second book on the disease and revising my first book to include the palliative care experience. I have seen this disease from the beginning and now I am witnessing the end stages first hand. My mother still resides with me, as we journey toward the end of this disease. I am now an expert in living with the disease as a sandwich generation primary caregiver. I have gone through the disease and all of the collateral damage that takes place alongside of it, including compassion fatuge.
Since my mother's diagnosis 17 years ago of "Atypical Alzheimer's disease, and the fact that she has been in palliative care for 2 years in my home, allows me to research the disease first hand, and show the world that caregiving is an integral part of managing and living with Alzheimer's disease.
Her book What They Forget To Tell You has been featured on Chapters, Amazon, Barnes and Noble and international bookstores. Click the link to get your copy today.